A rare disease diagnosis is the beginning of a journey of unknowns. From an HCPs ability to treat, to a caregivers' emotional burden, to a patient's sense of identity, there are a variety of factors that remain uncertain or unclear which makeup the unique challenge of having a rare disease.
Despite the challenge, people living with rare disease persevere and form communities - real communities - they share advice and relatable experiences while staying emotionally invested in each other's success. They've laid the groundwork. Advancements in the treatment of rare disease are both transformative today and tomorrow. Now, we must figure out how we fit in to creating that success.
Join us for this special edition as we begin preparing for Rare Disease Day (February 29) with Afshan Rizvi Hussain, Havas' own Global Rare Disease Lead.
If you have any questions, feedback, or just want to say hi, email us at medicalanthropology@havas.com
Check out Breaking the Code on LinkedIn: https://www.linkedin.com/company/breaking-the-code-havas-health-and-you-podcast
A rare disease diagnosis is the beginning of a journey of unknowns. From an HCPs ability to treat, to a caregivers' emotional burden, to a patient's sense of identity, there are a variety of factors that remain uncertain or unclear which makeup the unique challenge of having a rare disease.
Despite the challenge, people living with rare disease persevere and form communities - real communities - they share advice and relatable experiences while staying emotionally invested in each other's success. They've laid the groundwork. Advancements in the treatment of rare disease are both transformative today and tomorrow. Now, we must figure out how we fit in to creating that success.
Join us for this special edition as we begin preparing for Rare Disease Day (February 29) with Afshan Rizvi Hussain, Havas' own Global Rare Disease Lead.
If you have any questions, feedback, or just want to say hi, email us at medicalanthropology@havas.com
Check out Breaking the Code on LinkedIn: https://www.linkedin.com/company/breaking-the-code-havas-health-and-you-podcast